Chloe had a visit with the genetics physician at ACH and he was very pleased with the growth in her jaw and the opening of her hands. There was nothing in the genetic tests that point to problems other than the physical ones she has. He believes the theory that the small jaw caused the cleft palate and the contracture of her hands was from lack of movement inside Mom. He told Mom and Dad they could watch her developmental progress with the same concern as most parents. The next day Chloe had her first appointment with the occupational therapist in Rogers. She was moved to the top of their priority list and will be fitted for new splints and a schedule for OT.
She has great problems with reflux but continues to gain weight. Numerous formulas have been tried as well as a different bottle. Nothing seems to change the condition.
At three months old, she is growing beautifully, smiling, and maintains a very happy disposition. So far she only cries when something is wrong and stops crying as soon as it is fixed! Mom is at home full time with a busy schedule. Dad gives late night or early morning bottle and can be caught sleeping with Chloe snuggled on his shoulder many nights. She is sleeping for a six hour stretch at night so Mom, Dad, and Chloe all feel better. Retta and Pearl don't bother her, but seem to sniff and check on her during the day.
Oh my! we are so blessed.
That is the best news! We are so pleased Chloe is doing so well. What a job Natalie and Adam are doing. We will be looking parents up in the dictionary and see their faces! So is so pretty and looks like she has a lively personality! Chloe seems to have two best friends for sure- Retta and Pearl. Lots of love, Debi and Blake
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